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A Discussion About Family Experiences After Newborn Screening with NYMAC
March 27 @ 9:30 am - 12:00 pm
FOR WHO?
Parents or caregivers of children who had a medical condition diagnosed from newborn screening (bloodspot, hearing, or cardiac tests) in DE, DC, MD, NJ, NY, PA, PR, USVI, VA, or WV
WHAT?
A 2.5 hour online conversation with a small group of other families
WHY?
To learn from families about what aspects of their family‘s life were impacted by newborn screening, how families are doing years after the diagnosis, and how they can be better supported
If you are interested, please fill out the form and you will be contacted if you are selected to participate: https://forms.gle/2zFyPPmQztA5Wzgb6
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