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MARYLAND FAMILIES REPORT ON THE STATE OF THE STATE For Children and Youth with Special Health Care Needs

The Parents’ Place of Maryland (PPMD) is the statewide special education and health information center.

Our mission is to empower families as advocates and partners in improving education and health outcomes for their children with disabilities and special health care needs.

There are so many people who made this report possible. The families who took the time to answer our surveys and participate in focus groups, the PPMD staff, our partner Maryland Department of Health (MDH) Office for Genetics and Children with Special Health Care Needs (OGPSHCN), the Johns Hopkins School of Public Health, Sally Chan, Ph.D. for her stellar data analysis, and last but definitely not least, one of our founding members and long term leader, Josie Thomas. Her dedication, hard work, and passion are an inspiration to us all.

See the full report here.


RELATED RESOURCES

Federal Public Health Emergency Extended

On July 24th, the U.S. Department of Health and Human Services renewed the federal public health emergency (PHE) as a result of the continued consequences of the COVID-19 pandemic.  The Maryland Department of Health issued an official statement that all COVID-19 related flexibilities implemented by the Department remain in place, including the ability to offer telehealth services delivered using audio-only or non-HIPAA compliant technology. View the official statement below.

Resource: PDF
A Family Toolkit: Pediatric-to-Adult Health Care Transition

Got Transition and its National Family Health Care Transition Advisory Group developed a new toolkit for families to use during the transition from pediatric to adult health care. It includes a set of tools for youth and parents/caregivers to use to better prepare for the transition to adult care.

Resource: PDF
DD Council Resources

Maryland Developmental Disabilities Council has created a resource to support families engage in virtual meetings. View this resource here in English and Spanish.

Resource: PDF PDF

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